Assessment of parenting stress as measured by the parenting stress index-short form related to treatment and management of a child with phenylketonuria

Phenylalanine is one of many amino acids the body metabolizes and recycles to generate other amino acids. Phenylketonuria (PKU) is an inherited genetic metabolic disorder that results in phenylalanine hydroxylase (PAH) deficiency, which can impair the hydroxylation of Phe to tyrosine. Sustained high plasma Phe concentrations are associated with irreversible and harmful neurodevelopmental effects such as intellectual disability, cognitive impairment and behavioral problems. This study evaluated the levels and factors of parenting stress in parents/caregivers of children with phenylketonuria (PKU).

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• Abstract

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Project Type(s): Master's Thesis

Author(s): Angela Thanh Tam Stevenson

Program(s): Master of Public Health, RDN Training

Year: 2013

Adviser(s):

• Shirley A.A. Beresford